Usher Syndrome, when you slowly become deaf and blind. Usher Syndrome is a rare hereditary condition in which children are born deaf or hard of hearing and also experience progressive vision loss in addition to night blindness. Sometimes there are also balance problems. Eventually, people with Usher Syndrome become both deaf and blind.Treatment of Usher Syndrome is still not possible. The Usher Syndrome Foundation has a mission: "In 2025, Usher Syndrome will be treatable". And that requires a lot of money! Science is facing major challenges in the search for solutions that should lead to treatment for all 1,000 people in the Netherlands, 400,000 people worldwide.Want to help? Donate directly or create your own donation page to raise money for the Usher Syndrome Foundation (www.ushersyndrome.nl)
Rachael
7 months agoKeep the good work up 👍